One Month Follow Up

Two weeks ago, David and I made the trip back to Cleveland. This time it was for my one-month follow up. Since my appointments started as early as 7:45 AM, we decided to stay the night before. We first met with the infectious disease (ID) doctor. He went over exactly what vaccines I need when. Since my immune system was restarted with the stem cell transplant, I need to get all my childhood vaccines all over again! 🥴

After, we met again with the MS team, and then the transplant team. They both seemed to be happy with my progress. The way I’m doing now is pretty close to my baseline pre-stem cell transplant. Often, after being admitted for several weeks, it is very likely to decondition. The whole process definitely made me weaker and took its toll, but with my determination and my family’s continuous encouragement I am now one step ahead! I will continue with OT/PT for now and will continue to get stronger!

They’ve been continuously monitoring my blood work. At first weekly, now biweekly. My blood counts have been bouncing around a little bit, but overall they are heading in the right direction. Now that I am past the first month, which is the critical time, I am trying to get out more and leave my “bubble” 🫧.
Thank you to my awesome family and friends who have been visiting and keeping me company during this time! 😊


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9 responses to “One Month Follow Up”

  1. Anita Wallach Avatar
    Anita Wallach

    Sending encouragement from Texas!
    So glad to hear you’re doing better! You certainly have a positive attitude. Keep it going!

    With love,
    Uncle Perry and Aunt Anita

    1. Leah Kohanbash Avatar
      Leah Kohanbash

      Aww thanks so much, Aunt Anita! 🥰

  2. erin weston Avatar
    erin weston

    so great to read your post!!! (and glad you can get out of the “bubble” a little more confidently) that will be mentally HUGE for you as well.

    but YOU DID IT!!! you survived a Stem Cell Transplant!! YOU are an amazing human! with your determination and attitude there is no where to go but UP! there is no doubt that your strength will continue to improve – every day is a WIN!
    small goals – small victories – NO pressure on yourself!
    you have been amazing…

  3. Leah Kohanbash Avatar
    Leah Kohanbash

    Thanks so much Erin! Love reading your words of encouragement! 🥰

  4. erin Avatar
    erin

    “She stood in the storm and when the wind did not blow her away, she adjusted her sails.” – Elizabeth Edwards

  5. Erin Avatar
    Erin

    Felt the need to send you some extra words this weekend🥰. I hope you are enjoying your summer and getting physically stronger every DAY. We miss you so very much at Hillman.
    Hope your blood work is totally back to normal and you rocking all your new cells!

    1. Leah Avatar
      Leah

      Thanks so much Erin! Physically, I have a long way to go! My blood work is looking pretty good 🙂 just a few numbers that we’re waiting on. I miss you guys so much, I think of you every day!

  6. erin Avatar
    erin

    I miss your posts! thinking of you and wanted you to know!

    “Keep your face always toward the sunshine, and shadows will fall behind you.” – Walt Whitman

    1. Leah Avatar
      Leah

      🥰

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